Tongue Tied Kiddo: An Interview

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Henley, age 5

This is my daughter Henley. She is six years old. She loves Barbies, her pink scooter, and dresses with leggings. She was also born with a class 1 tongue tie, which means her tongue was heart shaped. It couldn’t move past her gum line, or lift at all from the bottom of her mouth. She clicked constantly when she was breastfeeding. We had it scissor clipped by an ENT when she was three days old. She was then able to nurse, but couldn’t handle my milk flow, never comfort nursed, and was addicted to pacifiers. She weaned at 21 months.  She has always had trouble with balance (didn’t walk until 16 months), swallowing solids without choking, saying certain consonant sounds, and had recently developed a stutter. I knew her tongue was tied, and that it needed to be revised before it caused lasting orthodontia issues or speech pathology. We decided to take her to a pediatric dentist to have her tongue released via laser this time. Here is the interview I conducted with her after the procedure. 

Me: So, tell me about your tongue.

Her: My tongue was tied, which meant I couldn’t touch my teeth with my tongue. The string under my tongue was too tight and it hurt when I chewed or talked a lot. [It should be said she said nothing about pain to me until she was in the parking lot of the dentist’s office and I told her what to expect. She said, “Mommy, will this help the string on my tongue not hurt so bad?”]

Me: So what happened at the dentist’s office?

Her: They let me watch Rio 2, and put special lipstick [chapstick] on my mouth so it wouldn’t dry out, and I wore cool shades.

Me: Did it hurt?

Her: It wasn’t ouchy because they gave me stuff to breathe that made me feel funny, then poked my tongue and it went to sleep.

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Laughing gas and shades

Me: Did you see what they cut your tongue with?

Her: The laser looked like a TINY pen with a light on the end. Like a flashlight for a mouse.

Me: Were you scared?

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Tongue Tie, before and after

Her: No. The dentist was nice, and covered me with a comfy blanky, and you were there the whole time watching.

Me: What was your recovery like?

Her: My tongue was weird all day, and then that night it hurt. Then, I got ice cream to lick and Popsicles, and grape medicine [Children’s Advil] that made it go away.

Me: You know, I work with babies who are too little to take medicine for the pain, what would you say to them about your tongue and the procedure you had done?

Her: To not be afraid, and to stay close to your mommy all day so she can give you milk to make you feel better. Oh, and don’t ask to watch Frozen because it doesn’t work on their TV.

By the next day, her stutter was gone. She is still lazy about saying some of her letter sounds, but I have no doubt that will remedy itself with time and as her tongue heals. She likes to show everyone all the things she can now do without her tongue tie. She can stick it out, move it from side to side, and say Ls! 

The Lip Tie that Binds

The below story was written by one of my warrior mamas, and reposted with permission.Below you will find her story regarding upper lip tie.

Our upper lip tie story:

The first two weeks without the shield left my nipples cracked, bleeding and in agony. That first night feeding I remember doing it every 30 minutes. In the hospital, I asked the nurse for help, it was a weekend and the lactation consultant wasn’t available. The several nurses I had weren’t very helpful. For two and a half months we used a nipple shield because nursing without it was just too painful.

Nursing with the shield worked for a while. I still would feed every hour for the whole two months. We’d have good days and bad. Baby had awful acid reflux and gas. I thought it was the dairy so I cut it out. Turns out it could have been due to the lip tie. I’ve been off dairy for months and I’m not about to rule it out and start it back up though. I wondered if baby was colicky and after several attempts at bottle feeding with no luck, I was forced to quit my job. Nursing was the only thing that would soothe him. Acid reflux got a little better, but never fully went away.

As baby began to grow, his suck power increased. At 2 months old, the nipple shield started to hurt, pulling my skin through the holes with his incredible sucking strength. Over the next two weeks I started trying to feed with out the shield as often as I could. I began researching lip ties and found his. When feeding without the shield would hurt too much, I would switch back for a day or so to heal. Then I would try again.

That brings us to this 10 week mark. Baby has been really fussy nursing, getting worse every day. I made an appointment with our Lactation Consultant. She came by next day on Tuesday and saw all of my struggles. Baby was refusing to nurse and acting like he was in pain when he latched. She agreed with me on the lip tie and also felt that this was the problem. The relief of her support was emotionally overwhelming. Finally, someone listening to me! She checked his milk transfer by weighing him before and after a feeding and it was really low. This is why I’m having to feed so often. Baby isn’t getting fully satisfied and isn’t taking good naps during the day because of this. She said that if I hadn’t been so persistent in feeding when baby demanded, he would have had poor weight gain and I would have probably had mastitis, clogged ducts and a damaged milk supply.

Here is a picture of his class IV upper lip tie.
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We had a frenectomy done two days ago to release it. Immediately after the quick, easy procedure, I was able to nurse him for the first time pain free!

Several people tried to help (bless them) with advice on letting baby cry it out, but I absolutely refused to do this. I followed my new mom instincts and consoled my baby with nursing 24/7. Feedings use to take half hour to an hour, then he’d be hungry again in half hour to an hour. Now they take 15 minutes, with a satisfied baby at the end! We’ve even been able to go 2-3 hours without a feeding!

The pediatrician said, “In 15 years I have never seen a case where upper lip ties effect breastfeeding.” And maybe usually it doesn’t, but in my case it did.

I followed my instincts, did my research and found a huge lacking in the diagnoses of upper lip ties relating to breastfeeding issues.

Pretty much feeling like a super hero mom now and so glad I was so head strong on sticking to breastfeeding. If I hadn’t worked so hard and if I hadn’t found the solution, I don’t know what I would have done. There needs to be more support for this in the pediatrician and pediatric dental world. I have come across many many many stories similar to mine! I can only imagine the amount of women who don’t even know they have this same issue, feeling defeated, they switch to formula when they don’t really want to.

Thank you Rebecca for sharing with us your story! Click here for more information on lip tie symptoms and solutions.